I hope you are all well and mother nature is being kind to you where ever you are.
Yesterday I met with my radiologist. He answered almost all of my questions. I told him I was thinking of asking for another oncologist because mine has not been answering my questions. He says that may delay my treatments. He’d like me to stay with him because they work so well together. He has encouraged me to insist on answers from the him which I more then intend to do. He had better answer because B doesn’t only stand for Bernie and Jim can tell him he DOES NOT want to see what else B stands for. Remember I was in the Army and I remember the language. LOL!
I asked why it was taking so long to start treatments. He claims that this is normal step by step procedure designed to insure I get the best possible treatment when it does begin. He admitted if he was in my shoes he would be just as frustrated as I am but at this point I am right on schedule.
I had another CAT scan. This time designed to pin point the exact area to be radiated. The point is to hit all the cancer cells but as few healthy cells as possible. They made me lay on a bean bag sort of thing. When they got me as comfortable as possible and in the perfect position for radiation they sucked all the air out of it which left it rigid, sort of like a cast. From now on every time I go in for a treatment they will lay me in that cast. Once the cast was formed around me they did a CAT scan. I now have two tattoos (Geez at me age!) Shucks, I was hoping for tiny butterflies but they are each only the size of a period. LOL! There is one on either side of my chest which will be guides for the radiology techs.
I don’t have an appointment yet but next week I will go in for a ‘dry run’ of the radiation therapy and to get another tattoo in the center of my chest. AND if all goes to plan I will finally begin treatments a week and a half later! It will consist of 33 radiation treatments and 6 or 7 low does Chemo treatments. Meaning Radiation five days a week for six and a half weeks and at the same time a Chemo treatment once each week. The radiation will each last five minuets. We are looking at starting about two weeks from today. I am thankful we finally have a date to shoot for. This all hinges on the oncologist getting his act together and getting the Chemo pre-approved in time. Dr. Choe REALLY wants the Chemo going at the same time as the radiation. He says with this type of cancer it really makes the radiation work best. I will see the oncologist on the 31st and give him a kick in the B hind if need be.
Last week I lost two pounds in spite of every effort to keep from doing so. Very disappointing. Yesterday I got on the scale and was ecstatic to see it I'd put on three pounds in one week! Yahoo!!! Hopefully I will be able to do the same next week and get my strength built up.
As my post tittle suggest it's not all good news. A part of the tumor has grown back and is once again beginning to obstruct my bronchial tube. It's only been five weeks since I had the bronchoscopy to clear my bronchial tube of all tumor and it's already blocking half of it again. If it blocks that airway it would most likely cause a collapsed lung. The treatment for that would be a chest tube. That would be painful and require a three or four day hospital stay which would definetly delay my treatments. Monday morning at 6 AM I will report to the hospital for another bronchcoscopy and have that tumor removed again. Radiation will shrink it and keep it from returning. The good news is the rest of the tumor has NOT gotten any bigger at all. Thank God!
Even before the CAT scan I knew the tumor had grown. I could feel it. I have to admit to really being frightened and an emotional wreck. Jim knew I needed an big emotional boost so he called Kai, my oldest son, and asked him to come over this weekend. Kai said he couldn’t wait and took the day off and drove over to spend the day with me. No small feat as it was three long hours of dangerous snow covered roads here and even worst it took him four hours to get back home. It usually only takes him a little over two hours to get here. I can not begin to tell you how wonderful it was to have that time with him and to get those fabulous hugs. Oh my I crave hugs these days, each one is so comforting and gives me such strength. I must admit to stealing more then just a few of them from him and shedding a few tears of joy to feel his arms around me. He plans to return soon and will bring his amazing wife Vona with him. Something to really look forward to. Vona is a nursing student and has been so very helpful answering my questions, asking her teachers for advice and help when she needs it to help me. She has been a real blessing.
Before I leave you I want to thank you all for your lovely comments, e mails, phone calls and fabulous cards. I am sorry, I have tried to thank each of you as your cards have arrived but I know I have missed a few of you. When all this started I asked Our Heavenly Father to send me an angel to help me thru this. He didn’t send me one, instead He has sent me dozens upon dozens. Angels do exist, some don’t have wings and we call them friends. Each and everyone of you is an angel to me and you can be sure you are truly making a major difference in my life when I need you most. I find there are people out there just waiting to drag me down but one glace at the stack of cards and the page after page of your comments and e mails keeps me positive and determined and the words to the song I Will Survive often comes to mind.
Oh, no, not I, I will survive
Oh, as long as I know how to love,
I know I'll stay alive
I've got all my life to live,
I've got all my love to give
And I'll survive, I will survive.
I thank you all for that and I hug each of you in my heart.
Love and Blessings